The Lived Experiences of People with Sickle Cell Disease and Acquiring Health care
The Lived Experiences of People with Sickle Cell Disease and Acquiring Health Care Dissertation Proposal Submitted in Partial Fulfillment of the Requirements for the Degree of Doctor of Philosophy Health Services May 2019Abstract People with sickle cell disease (SCD) often face recurring and severe episodes of pain requiring them to frequent emergency rooms for treatment. For many people with SCD employment is not maintainable and episodes can lead to organ failure leaving family members and caretakers the responsibility of making their health care decisions. Research has documented the treatment and evaluation of SCD, but no treatment prevention has been explored. As the SCD population increases, so do the need for access to quality healthcare. This proposal will describe the experiences of people with SCD ages 21-35 and acquiring health care. This proposal will also address current literature regarding physical and psychological debilities, barriers with access to primary care physicians, the theoretical basis, which guides this research, as well as the suggested methodology to understand the SCD patients’ experiences and acquiring health care. The phenomenological inquiry will help to comprehend the experiences of life of these patients. Keywords: sickle cell disease (SCD), SCD population, treatment, evaluation Table of Contents TOC o "1-3" h z u CHAPTER 1 PAGEREF _Toc526188023 h 4Introduction to the Study PAGEREF _Toc526188024 h 4Background of the Problem PAGEREF _Toc526188025 h 7Statement of the…
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